The top 10 books about disability

Great books take us where we haven’t been, illuminate dark corners and leave our own familiar world subtly changed, as if its axis has been marginally tilted. But despite literature’s fervour to explore the far reaches of human experience, disability is for the most part disregarded, or at best pushed to the margins. Disabled protagonists are few and far between.

In my latest book, Mouse and the Cossacks, Mouse is a young girl who hasn’t spoken for four years. She is an elective mute. She is also the narrator of the novel, through whose eyes and ears (“My ears work fine, it’s just my voice that doesn’t work”) we come to understand not only her world but that of the perplexing old man whose farmhouse she and her mother are renting, and her young neighbour who has a learning disability. Of my previous novels, Someone to Watch Over Me, Do White Whales Sing at the Edge of the World? and Noah, Noah all feature characters with a learning disability, and The Visiting Angel is based in part on my experience of working for the Richmond Fellowship in mental health therapeutic communities.

1. To Kill a Mockingbird by Harper Lee

To Kill a Mockingbird by Harper LeeAlthough the three children, Scout, Jem and Dill, are increasingly upset by the community’s prejudice towards Tom Robinson, the black man being defended by Scout’s father against an unjust accusation of rape, they themselves exhibit a similar prejudice towards their neighbour, Boo Radley, a man with a learning disability. Hidden away behind his front door, Boo Radley exerts a powerful hold over the children’s imaginations until his own brief and dignified appearance centre-stage towards the end of the novel.

2. Of Mice and Men by John Steinbeck

Of Mice and Men by John SteinbeckIn migrant farmworkers George and Lennie, Steinbeck creates a touching but ill-fated friendship between two very different men clinging to their piece of the American dream. Although Lennie serves largely as a metaphor for the death of innocence in a hardened, Depression-era America, he also sheds light on the way that learning disability can be exploited unless it is nurtured and feared because it is “different”.

3. The Sound and the Fury by William Faulkner

The Sound and the Fury by William FaulknerThe first 60-page section of Faulkner’s landmark novel are presented through the eyes of Benji Compson, a man with a profound learning disability. In a shift away from the realist fiction of Dickens and Hardy, this is a spectacularly brave attempt to see the world through the eyes of someone whose disability brought such shame on the family that when his condition became apparent he was stripped of his original Christian name so as not to dishonour the uncle he was originally named after.

4. Moby-Dick by Herman Melville

Moby-Dick by Herman MelvilleThere’s an ongoing debate in disability politics over to what extent disability should be seen as a deficit or as a difference. Melville’s classic sticks rigidly to the former view, but creates a memorable tale of would-be revenge sought by the one-legged Captain Ahab against his nemesis, the whale.

5. The Curious Incident of the Dog in the Night-time by Mark Haddon

The Curious Incident of the Dog in the Night-time by Mark HaddonHaddon’s is a remarkable act of ventriloquism. Illuminating the difference that is an autistic mind, he allows us to do what Scout’s father, Atticus, encourages his children to do in To Kill a Mockingbird – to walk around for a while in another person’s shoes to see the world as they see it.

6. The Secret Garden by Frances Hodgson Burnett

The Secret Garden by Frances Hodgson BurnettThe Secret Garden made a great impression on me when I read it as a child. Published in 1911, its central character, Mary Lennox, befriends Colin, a boy who uses a wheelchair and, never venturing outside, is in every sense an “invalid”. With the help of young Dickon, they bring back to life not only Colin but the “secret garden” once loved by Colin’s mother.

7. The First Man by Albert Camus

The First Man by Albert CamusServing as a bridge between my fiction and non-fiction choices is the autobiographical novel of Camus’ childhood spent in an impoverished district of Algiers, the draft of which was found in the wreckage of the car crash in which he died. Camus’ illiterate and deaf mother, who worked as a cleaning woman, features prominently in the novel, as does his deep attachment to her. The football-loving Camus and his friends stage their games in the grounds of the Home for Disabled Veterans. Camus, who remained loyal to the poor, the sick, the deformed and dispossessed, remarked that, “Poverty prevented me from judging that all was well under the sun and in history”.

8. The Giant’s House by Elizabeth McCracken

The Giant's House by Elizabeth McCrackenIf other people suddenly discovered they could fly, would my flightlessness make me disabled? Disability, as opposed to impairment, is so often a social construct and it’s this that can make it so isolating. In McCracken’s book, James Carlson Sweatt grows to be over eight feet tall, and the way his height both is and isn’t a disability creates a luminous offbeat story of love between him and unassuming librarian Peggy Cort.

9. A Son of the Circus by John Irving

A Son of the Circus by John IrvingIrving isn’t shy of writing about physical difference (Owen Meany, Patrick Wallingford, Billy, the bisexual narrator of In One Person). In A Son of the Circus, he explores the challenges of achondroplasia, circus life and poverty in a beautiful hymn of Dickensian intricacy which opens boldly with the line, “Usually, the dwarfs kept bringing him back”‘ but never descends into either voyeurism or pathos.

10. Far From the Tree by Andrew Solomon

Far From the Tree by Andrew SolomonPublished earlier this year after 10 years of research, Solomon’s mammoth tome offers stunning insights into what it is to raise children who are different to yourself. With chapters on Down’s Syndrome, deafness, disability, autism, dwarfism and schizophrenia, built around hundreds of interviews with parents, it is humane and deeply moving.

theguardian.com, 3 July 2013

ΟΙ ΤΕΛΕΥΤΑΙΕΣ ΔΗΜΟΣΙΕΥΣΕΙΣ

Η Παραολυμπιακή γιορτή του Σότσι

Για πρώτη φορά στην ιστορία των Χειμερινών Παραολυμπιακών, στο Σότσι, Ρώσοι αθλητές θα μετάσχουν σε όλα τα αγωνίσματα. Απαντες τονίζουν ότι οι επιτυχίες αυτών των αθλητών, είναι δυνατές μόνο όταν η …

Η Μέρκελ… καθιστή

Η εμφάνιση της ΄Αγκελα Μέρκελ στη συνεδρίαση για το πρόγραμμα της νέας κυβέρνησης είχε μια ιδιαιτερότητα. Για πρώτη φορά στην ιστορία θα γίνει η ανάγνωση των προγραμματικών δηλώσεων με την καγκελάριο …

Σάο Πάολο: Η πρώτη πάσα, από παράλυτο έφηβο

Κάπως έτσι θα δοθεί το εναρκτήριο λάκτισμα στο Μουντιάλ της Βραζιλίας. Το βέβαιο όμως είναι ότι η κορυφαία στιγμή του Παγκοσμίου δεν θα γραφτεί από τον Ρονάλντο ή τον Ρούνεϊ, αλλά από έναν παράλυτο …

Η Μέρκελ απτόητη από τον τραυματισμό

Οι πατερίτσες δεν εμπόδισαν την Αγκελα Μέρκελ να υποδεχθεί χθες στην καγκελαρία παιδιά από όλη τη Γερμανία που της έψαλαν τα κάλαντα, ενώ ο τραυματισμός της δεν θα σταθεί εμπόδιο ούτε στην παρουσία …

Κλινήρης αλλά παρούσα στα σημαντικά μίτινγκ

Η είδηση του τραυματισμού της καγκελαρίου κατά τις χειμερινές διακοπές της αποτελεί ακόμη πρώτο θέμα. Το ερώτημα που θέτουν αναλυτές είναι σε ποιο βαθμό αυτό επηρεάζει τις κυβερνητικές της …

Ισότης μέχρι ισοπεδώσεως

Είναι δυνατόν να μην μας έχει απασχολήσει ποτέ το γεγονός πως τα άτομα με αναπηρίες «δικαιούνται» ακριβώς τις ίδιες παροχές είτε εργάζονται είτε δεν εργάζονται είτε είναι ισοβίως άνεργοι; Εάν κάτι …

Πνιγήκαμε σε μια κουταλιά ΚΕΠΑ

Οι καθυστερήσεις στα ΚΕΠΑ είναι ένα τεράστιο πρόβλημα που όλοι μας το αντιμετωπίζουμε καθημερινά. Όμως εάν αντιληφθούμε συνολικά το πρόβλημα της πιστοποίησης του βαθμού αναπηρίας ως προς το μέγεθος …

Ελλάς Ελλήνων Υπνωτισμένων

Έχουμε χάσει την επαφή με την πραγματικότητα. Κάτι περίεργο μας ψέκαψαν και έχουμε χάσει κάθε επαφή με την κοινή λογική και ακόμη περισσότερο με τον δυτικό ορθολογισμό. Δεν υπάρχει αμφιβολία πως …

Εκκωφαντική βουβαμάρα από τους φορείς των ΑμεΑ

Δικαιολογημένες απορίες συνδικαλιστών για την αδιαφορία των συνδικαλιστών. Ούτε ένας συνδικαλιστικός σύλλογος αναπήρων δεν ενδιαφέρεται για όλα αυτά που συμβαίνουν στο ΕΟΠΥΥ και στο ΕΣΥ; Σάλος από …

Prosthetic Limbs Offer a Sense of Touch

The sense of touch allows us to process data about our everyday world. Without it, we might have to visually calculate how wide to stretch our fingers each time we reached for the phone or how much …